Utilizing Discrepancy Theory to Quantitate Quality of Life in Chronically Ill Children
| dc.contributor.advisor | Birod, Carlos E. | en |
| dc.creator | Webb, Bryn | en |
| dc.date.accessioned | 2010-07-12T16:21:43Z | |
| dc.date.available | 2010-07-12T16:21:43Z | |
| dc.date.issued | 2007-12-03 | |
| dc.description.abstract | BACKGROUND: Quality of Life (QoL) is a ubiquitous yet poorly defined concept in clinical medicine. Many widely used instruments to measure QoL lack a theoretical basis and therefore may not provide accurate assessment. Multiple discrepancy theory advocates that net satisfaction is determined by evaluating the difference or gap between current life circumstances and a standard of comparison. A QoL instrument based on discrepancy theory has been developed by our research group to evaluate children with chronic diseases. OBJECTIVE: To evaluate the parent-child agreement for discrepancy theory items on the GAP QoL Questionnaire for children with chronic illness. DESIGN/METHODS: Children and parents were recruited for this pilot study when attending regularly scheduled appointments in a variety of outpatient clinics at The Hospital for Sick Children (SickKids). Trained interviewers administered the GAP Questionnaire to parents- and to their children if older than age 10. Children and parents answered the questionnaire blind to each other's answers. RESULTS: 77 participants (28 children, 49 parents: 24 parent/child pairs) were enrolled. The most important items for determining QoL generated by the GAP Questionnaire differed for children and parents (See Table). The overall weighted Kappa value for parent-child agreement on the GAP Questionnaire was 0.349 indicating moderate agreement. Items with the highest agreement were having pets (0.6962), getting along with brothers/sisters (0.5886), and the place religion has in your life (0.549). | en |
| dc.format.digitalOrigin | born digital | en |
| dc.format.medium | Electronic | en |
| dc.format.mimetype | application/pdf | en |
| dc.identifier.oclc | 183887850 | |
| dc.identifier.uri | https://hdl.handle.net/2152.5/225 | |
| dc.language.iso | en | en |
| dc.subject | Perception | en |
| dc.subject | Attitude | en |
| dc.subject | Quality of Life | en |
| dc.subject | Chronic Illnesses | en |
| dc.title | Utilizing Discrepancy Theory to Quantitate Quality of Life in Chronically Ill Children | en |
| dc.type | Thesis | en |
| dc.type.genre | dissertation | en |
| dc.type.material | Text | en |
| thesis.date.available | 2008-12-03 | |
| thesis.degree.department | UT Southwestern Medical School | en |
| thesis.degree.discipline | Research | en |
| thesis.degree.grantor | UT Southwestern Medical Center | en |
| thesis.degree.level | Doctoral | en |
| thesis.degree.name | M.D. with Distinction | en |