Browsing by Subject "Information Dissemination"
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Item Addressing privacy challenges in healthcare through the lens of contextual integrity(2023-02-14) Nissenbaum, Helen[Note: The slide presentation is not available from this event.] In healthcare, as in other social spheres, digital technology has posed dire challenges to entrenched approaches to privacy. Yet, as a fundamental cornerstone of ethical healthcare, privacy cannot be allowed to erode. The theory of contextual integrity (CI), which defines privacy as appropriate flow of personal information answers the need for a meaningful concept of privacy that, simultaneously explains its value to individuals and to societies. CI requires that we bend away from one-dimensional ideas, which for decades have gripped the privacy domain, namely, control over information about ourselves, stoppage of flow, or fetishization of specific, "sensitive" attributes (e.g., identity, health). This lecture will review key ideas behind CI, contrast it with alternative accounts, and apply these ideas to the domain of intensive health care and health research domains, distinctive not only for their societal importance but for their ages-long attentiveness to privacy.Item Development of a Manual for Intradepartmental Maintenance of a Laboratory Web Site(2005-05-03) Diehl, Angela Marie; Calver, Lewis E.The purpose of this thesis dissertation is to document the development of a web site that could be easily updated on a regular basis by a member of a research laboratory using the instructions in the accompanying manual. The advantage to using a web site as a means of communication with the target audience is that the information can be accessed instantly from any location at any time of day. This is especially advantageous to a laboratory because it allows researchers to share data immediately rather than waiting for articles to be published. Therefore, its effectiveness is dependent on whether or not the information is kept current. The inspiration for this project came from a discussion I had with Dr. Anderson about his hesitation about having a web site because he wouldn't have a way to keep it up to date unless he hired an outside source, which would be cost prohibitive. I specifically designed the site in such a way that his administrative assistant, Brenda Pallares, could update the information herself by following the manual I created. I used images of the web site as it would appear on her computer screen when viewed in the editing programs so that she could follow the instructions easily. The manual allows an individual with no experience in web design to perform the simple tasks necessary to change or edit the content without altering the overall design and structure of the site. The value of this project is that it is a model for individuals who want an outside source to design their web site, but want the flexibility of being able to maintain the content themselves.Item Open access medical journals: promise, perils and pitfalls(2020-03-10) Iserson, Kenneth V.The number of both print and open access (OA) journals has increased dramatically. Although electronic availability of information on the Internet offers great potential for information sharing, it also gives rise to "predatory" journals and deceptive publishers that target naïve academic authors with false promises of easily fulfilling their "publish or perish" obligation. Legitimate and respected OA journals also exist. This talk will focus on the potential professional and ethical perils of publishing in "predatory" journals, as well as the opportunities and barriers associated with publishing in legitimate OA journals. Although it is difficult to distinguish between the two types of OA journals, I will suggest methods to help identify those that may not be legitimate. Unfortunately, this is not a simple task; there is no shortcut. Rather, it takes some effort -- on the part of authors, mentors, colleagues, professional organizations, and librarians -- and possibly IRBs and bioethics committees.